Disability - Thinking for two more seconds

Growing up I felt very proud of my country, a country that after the war, after going through so much, created the NHS & the welfare system because it was needed & the right thing to do.

Aneurin Bevan said on the formation the NHS that “despite our financial and economic anxieties, we are still able to do the most civilised thing in the world: put the welfare of the sick in front of every other consideration.”

And growing up this is how I felt my country was, that on the whole we would always try to do the right thing, the moral thing. Later, naturally I lost my child-like naivety, I know as a country we have got it wrong but somewhere down the line the truth has been twisted, moulded into something that is not.

Certain sections of the media have perpetuated stories unrepresentative of the majority, twisting stories to create sensationalised headlines, backed up with manipulated statistics.

Stories on “welfare reform”, benefit claimants with 60in TVs, of disabled claimants that dare to step out of the house, even implying welfare is somehow responsible for murder.

And if history has shown us anything, if something is repeated often enough, regardless of validity, people will start to believe it.

As a result, media & public opinion have become so hostile in parts that many disabled people feel guilty or feel that society expects them to feel guilty, like they have done something wrong, whereas in reality they have done nothing of the sort.

And the thing is, why should any disabled person feel guilty?

I have multiple conditions, none of them were my fault, it is rarely anyone’s fault that they become disabled & it can happen to anyone.

When using public transport, I’ve been glared at, muttered about & verbally attacked because I’m a young girl sitting in the priority seat with my walking stick in hand even though I’m more than entitled to be there, just as any disabled person is.

When I have gotten on & there are no seats, people will automatically move for an elderly person that gets on. I have no problem with that. When I was younger & able, I was brought up to offer your seat to an elderly person if they got on & there are none available as a matter of respect. My point is many a time an elderly person has gotten on with better mobility than my own & they are offered a seat automatically, but for me people will wait & stare, the cogs in their head trying to work out, why does a young girl need a stick, inevitably as I start to stumble someone else moves & offers me their seat.

My point is that some people believe that, of course an elderly person will have mobility problems but a young person surely wouldn’t. They either don’t fully understand how & to what extent young people can be disabled, or believe what has been said in the media, that benefit fraud is high.
It has got to the ridiculous stage that people have even been berated in the media for having “nice things.”

The amount of times I have heard people say “Well I can’t afford an iPhone so why should they be able to get one,” is enough to drive anyone insane.

But people don’t take the time to think for longer than a second that it may have been a gift, that it may have been bought before they got sick, that they took out a loan for it or got it on the never, never. Also often people don’t realise that many disabled people do work.

They don’t think for a second that we all have different priorities, you may go out 3 nights a week at £50 a go, whereas the disabled person may not go out at all or very rarely & instead saves their money for their contract phone of £40 which in comparison means they are spending considerably less.

People don’t think for a second that its their lifeline, their contact with the hospital or GP, to friends or family, their ability to socialise & keep up to date with the outside world which is especially vital when enduring stints in hospital.

People don’t think for a second how much technology is an aid for people with disabilities & that this is only going to get bigger.

An iPad or tablet for example is great for people that can’t lift up a conventional laptop & need to move position & location during the day. Voice dictation & predictive text software is improving with every new update, helping people with dexterity issues such as arthritis & hypermobility. Disabled people do so much with technology, often using technology to complete tasks they can’t physically do in real life.

Another topic I have found people to obsess on is that people should be given food stamps or their benefits on a government card that excludes items such as alcohol & cigarettes.

Firstly I will never understand how someone can become so obsessed with making sure that people don’t have certain things & how they find the energy to, but in countries that have adopted these systems, they are always more costly to implement & a black market always forms along side it.

You also would be creating a level of stigma, a way to recognise those who are receiving support & I often wonder if people want that to make themselves feel better about their own lives.

I have also heard people state that “unless you have paid something into the system, you shouldn’t get anything out.”

So what about children born with severe learning disabilities & disabilities? Or teenagers who are diagnosed with a disability? Tough luck?

Yes, some disabled people are able to work but others can’t, with better systems in place & real support, it may be possible to help more people in the future but I don’t think anyone should be penalised because they were born disabled or developed a disability when they were young before they had a chance to pay in. Disabled peoples’ contributions to society are too often dismissed if it isn’t through paid work.

People complain about what their taxes are spent on, I don’t think that will ever change but in comparison to countries with mostly private services, it is so much more expensive added together. Due to the type of system we have, there is no profit made & as many pay in, it acts like a group discount meaning that it is cheaper for all.

People seemed to understand that although you may not receive anything at the time, that it was there for if you were ever unfortunate enough to need it or for any of your family or friends. I didn’t have my disability or illnesses from birth, like most they came later in life & it can happen to any of us.

I think we are too quick to pass judgement, possibly more now through the advent of social media.We used to think deeper about what we were going to say, not to edit ourselves but to form a balanced opinion. However I feel that when we don’t take more than a second to look deeper, like with the media, inaccuracies & prejudices unrepresentative of the majority will continue to be passed off as the majority, This is only going to increase the toxic nature & hostility towards people that require assistance & we should hold on to some of our child-like instincts & embrace a balanced, factual judgement.

I can’t understand how people are attacking the most vulnerable in this country, on a misguided belief that what a minority of the group do, is some how representative of the majority but ultimately disabled people in this country didn’t get us into this mess in the first place & deserve support. It is also not that benefits are too high but that people have different priorities & for some, wages are too low in relation to living costs.

And to the disabled people in this country, you shouldn’t feel guilty as long as you have the conviction in your mind & in your heart that you are doing all you can, you can’t ask for more. Disabled people should no longer feel guilty for peoples’ inaccurate beliefs & should no longer feel guilty because people aren’t thinking for longer than two seconds.

Who cares about carers?

I have heard many a time on forums & such people stating, why should we pay a benefit to people for caring when surely if they care & love the person in question that requires the care, they would do it anyway?

The thing is, yes they all would.

Caring includes everything from round the clock nursing, to completing some tasks & aiding the disabled person to do the rest themselves, to being more of a personal assistant.

It’s not about the grand sum of £59.75, if the short change that the government pays to carers was paid to a care provider to instead provide the ‘care’ it would equate to £1.70 an hour & I can’t see any outside care company providing anything for that, no where near close to the minimum wage.

This you are only entitled to if you provide 35hrs of care, of which there are many carers that provide way over this many providing 24hr care, always on call with very little respite & others that provide less & don’t get the “marvellous” sum of £59.75 but still care & aren’t any less valuable

Carers & the disabled people they care for don’t want pity mind you. Although disabled people have some limitations due to their disability, it doesn’t mean that they don’t have aspirations. By completing the tasks that the disabled person can’t do or the tasks that would take so much out of them, can mean the difference between the disabled person just ‘existing’ & the disabled person being able to concentrate on some of their own life choices whether this be working, studying, arts & crafts etc. Disabled people in this country have valuable contributions to make to society & their carers are vital in enabling disabled people to fulfil their life choices.

Carers also look after friends or relatives that are living with some of the most challenging or terminal of conditions. For a carer to slowly see their loved one taken by dementia for example must be heartbreaking, to slowly lose someone you care about over time.

People also don’t realise how heartbreaking it can be to watch someone you care about so deeply go through pain & illness. I myself always deal with a level of pain all the time, people often think how the disabled person is dealing with their condition but often the distress that the carer feels is often overlooked.

Carers often see & face the hostility that disabled people have to contend with from certain sections of society.

Carers are often the people that fight your corner for what you need, often it can be when rushed to hospital & as you are too ill, you no longer have the strength to argue yourself to remain in the hospital for treatment (you would rather be in your own bed) as the Junior Doctor fails to fully understand your condition & the gravity of the situation & wants to send you home. Your carer fights your corner, makes a “fuss”, insists on being seen by the registrar which when you do, they apologise as the information you had given the Junior had not been shared & now the registrar understands the gravity of the situation & how serious it could have been. The carer had seen it all along, this isn’t unusual.

I always wonder were carers fit into the Conservative’s “Hardworking Britain ?”

I detest this statement, what is your definition of hardworking? Would a person that owns a multi billion dollar company be your idea of hardworking because they make so much money? Would they still be the ideal hardworking person if their company dumped chemical waste & exploited their workers? Would they still be the ideal person if they never saw their family?

Just because a person may not make millions, does it mean that their contribution is any less?

Hardworking has nothing to do with the amount in which you are paid, some of the most important things that keep our society together are done by people that get no or little financial reward. We must focus on making a conscientious society & as well as a strong economy but not one where the focus is on obtaining the biggest financial reward at any cost to society.

Carers are deeply under valued & unappreciated by the state but they don’t care for people because the state tells them to, they see they are needed & are valued enormously by the people they care for. Our ability to care is one of the best aspects of humanity & if carers stopped caring the cost to the state would be enormous. The fact is that even with giving this small amount of £59.75 (too low in my opinion) to the carers in this country, it is much more “cost effective” than if the country had to employ an army of carers. It also means that even a small amount can allow the carer a break & allow them to do something they enjoy. Caring isn’t the same as looking after a loved one that has the flu. Many people often don’t understand the effort that people put into caring often the putting the person they are caring for before themselves & often can’t have a ‘day off’.

The thing is you can’t put a price on the care & support that the carers of this country provide

Carers enable, carers are anyone. They are wives, husbands, sisters, brothers, mothers, fathers & friends & regardless they will always keep on caring.

Carer’s UK

The Big Benefits Row: Facts, fiction & a whole lot of yelling

The show began first with a montage of multiple clips from the bewildering amount of benefit shows that have been produced recently from it being mentioned in the papers, to the news, in documentaries & through benefit bashing tv.

The long & short of it is, the small percentage of fraud that occurs is drowned in the sea in coverage it receives & I think this is the single most important point that people don’t understand. This is a trend that has been seen throughout history, that it is not necessarily a reflection of the reality of the time but instead reflects the attitudes of society which I covered a bit in  The evolution of benefit tv.

Question 1: “Do you think the benefits system is fit or unfit for purpose?”

Apparently 66% believe that it isn’t.

I’d love to know how many people actually know what support the benefit system provides & how many voted unfit because they were thinking instead about even with the countless forms filled in & assessments people have, that many people found “fit for work” are having their benefits reinstated on appeal.

At the start you had Katie Hopkins as usual never pausing for a moment to engage her brain before running her mouth. She started as many have done on this topic trying to pass off prejudices & stereotypes as fact but was pulled into reality by Mathew Wright.

Then Mathew Wright explained that they wanted to separate the facts from fiction.

FACTS?!?!?!?

Excuse me while I wet myself in delight at a show that is presenting the facts instead of perpetuating myths further.

Matthew Wright highlighted that tax evasion is far greater than benefit fraud (with the resources dedicated to tackling this far lower) & Annabel Giles spoke brilliantly even with Katie attacking her in a childish voice that she “wanted to be a model & didn’t make it”.

Katie went on further about people having multiple children & was quickly told it is a very small minority, not the norm. This was followed with people on housing benefit living in posh neighbourhoods, again not the norm & this was finished of with remarks about how “hardworking Britain” had had enough of going to work & seeing people staying at home, this being said without any thought to what the person behind the curtain may have to contend with.

Question 2: “Do you think the portrayal of people on benefits is fair or unfair ?” A close split.

Peter Stringfellow like many doesn’t consider a pension a benefit. He said that his main concern was the “abuse, not the majority of people. I’m looking at people over there” (pointing to the people in wheelchairs) “that deserve everything they can get”. But when Mathew pointed out that the abuse was small he replied “Not it’s not small.”

I doubt that he meant just people in wheelchairs but people with disabilities as a whole. However so often people don’t understand how significant invisible & variable conditions are, how much people struggle to walk on crutches or with a stick & the effort, pain & discomfort they go through. This is particularity important when people in the latter have to use a wheelchair to get around, this can often be on occasion when their condition is particularly bad or dependant on the situation. It can also be when they go out because their condition is such that they can’t move quickly, safely or the pain & exhuastion would be too much & can’t simply “hop out” without a great deal of difficulty.

Ironically this occurred just before the show when Sue Marsh had to leave her chair outside then struggle up into the seats because the disability provision wasn’t adequate. People often don’t understand the effort it takes to do things that people take for granted & the amount of time it takes from you to recover which Sue details in her post about her experience about being dropped from the panel & the lack of provision.

Then there was "White Dee". I thought she was either going to blow her top or say her piece, keep quiet & let Katie Hopkins tie herself in knots which she did beautifully.

Annabel Giles pointed out, that if ‘White Dee’ was well & didn’t have depression of course she would be working & Dee agreed. I can’t understand why some people believe this is the “optimum lifestyle choice” whereas in fact they have no choice at all because they are ill.

Question 3: “Would you support or oppose tougher means testing & rules about claiming benefits ?”

Apparently 66% were in support & I wonder greatly how many have any idea how difficult, demeaning & time consuming the whole process is.

Rachel Johnson was a pleasant surprise, coming from the point of not knowing much about her, she commented on the worryingly high percentage of people being sanctioned on JSA & that for people to get help from a foodbank they need a voucher to Edwina Currie to which she replied “only some of them”

Matthew saw this as a great opportunity for Jack Monroe’s opinion. It would have been nice to have heard more of what Jack had to say, unfortunately Edwina was intent on childishly shouting her down.

Jack explained that “You can’t rock up to a food bank & just ask for some free food” but Edwina disagreed. Jack pointed out that she works with the Trussell Trust, the biggest foodbank organisation in UK which in order to get help you need a voucher.

Then for some bizarre reason Edwina said they only run one & when she’s asked if she’s ashamed that people beg for food, she says no.

Jack started to make a reasonable point about the economy & bankers when she’s cut off again by Edwina.

"You come from a rich family." Jack explains again, no she doesn’t. "Yes you do come from a rich family," Edwina says with all the finger pointing of panto.

I had read that Jack had said these accusations had been happening before the show & she said she wanted to say her piece which she is more than entitled to do. She explained that her mum was a nurse, dad was a fireman & that they were hardworking ‘blue collar’ workers.

Edwina throughout Jack trying to speak made countless rapid interruptions, to the point she spoke so quick at times you could barely make out what she had said. It’s clearly obvious when you’re interrupting someone like this you want to stop them from talking, bate them & nothing more.

Edwina continued with countless interuptions about how they both went to grammer school….so what? Many a kid from council estates did also & that it was Jack’s grandfather who was “rich”, that he was a big property owner. By this point Jack, obviously upset, stated he had died with Edwina stating that she knew because she had seen the obituaries

Creepy.

Even more so when you know that she had taken the time before the show to search through Jack’s blog, to find a post she had done & tweet it out before hand. It also shows that before the show she knew she was likely going to bring up her grandfather, to get personal maybe because she didn’t have any defence. She says she admires Jack but her behaviour says anything but.

Also because she wasn’t willing to listen she missed a vital point

Jack is anyone

Jack didn’t come from an abusive family or a family dependent on benefits. The government rhetoric is if you work hard & get on you will be fine & in the unlikely case that you do fall, the system will protect you but it doesn’t and in Jack it proves it. See Jack’s heartfelt post about what she didn’t get to say.

Next they played a clip of “On Benefits & Proud” featuring Emma & Sophie. They explain the programme made them out to be something they’re not, that the system has helped them a lot & no that it wasn’t a comfortable existence.

Yet again, Edwina interrupts “go & get a job” repeating it over & over.

She then got a massive piece of her own medicine, the girl turned around quick as a flash “gimmie a job, innit” repeating it over & over. It reminded me of some Catherine Tate sketch that I couldn’t help but be pleased to see on this occasion.

Question 4: "Would you support or oppose new immigrants being allowed to claim benefits in the first year in the UK?" 76% oppose

Weirdly there was applause from the audience. Often there has been, in the same way as with benefit claimants a lot of stereotyping & myths surrounding immigration issues which people believe including those on benefits. Often pitted against each other, some benefit claimants believe that the reason that they can’t find a job is due to immigration.

Owen Jones brought up points about bankers, tax avoidance & the stereotyping of immigrants & the good that they have done for this country is often over looked.

I think the issue of immigration needed to be on a separate show (which Channel 5 are apparently going to do) as it felt squeezed on to the end, they didn’t have enough panellists to have a proper debate or the time & like with welfare it is yet another issue that has been a used as scapegoat topic.

The fact that they presented facts at the start of the programme was uplifting, I think it is truly disturbing how many programmes are aired with no reference to the actual facts of matter but instead just help perpetuate myths further.

There wasn’t enough time to address everything in the detail that it needed to be. A 45 minute show can’t undo the countless months of government opinion, tabloid “news” & benefit bashing tv, much more is needed to get to that point. People didn’t understand or want people like Katie Hopkins & Edwina Curie up there but the fact of the matter is it’s exactly people like Katie & Edwina that are helping perpetuate myths further because they either do not care about the people affected or that they don’t understand that things that they are annoyed about are myths or don’t represent the majority. When you put people like Katie & Edwina on a show like this against people that know their facts, they show themselves up to be the narrow minded people that they are….as long as people can speak that is.

Fleetstreetfox’s article on her experience

Owen Jone’s article on his experience

Evolution of benefit tv

In recent years there seems to have been a greater focus on programming that covers topics that involve illness, disability & social deprivation.

It’s not a new phenomenon, these types of programs have always popped up from time to time & it’s well known that what the media shows us of these times may not be the reality but often will instead show the attitudes of society.

I’m very divided on these shows, I love documentaries, I will watch documentaries that are controversial & opposite even to my beliefs. The reason why, is that I firmly believe that the instant we cut ourselves off from knowledge, from the possibility that we may be wrong, we will never learn anything new.

I know that some people didn’t like the way that these shows had been filmed, I know these ‘shows’ have ranged vastly from benefit bashing tv made solely for entertainment to valuable insights to what the disabled & disadvantaged are facing at that time but also the public’s perception.

Unfortunately through over reporting of certain issues, certain sections of the media have given the false impression that fraud is rife, that there needs to be a crackdown on the ‘wave’ of benefit cheats but ‘real’ disabled people will always be protected. Unfortunately there is also a further section of society that believe that benefits should only be given to the ‘housebound’ because if people can get out of the house then why don’t they get a job? People don’t understand how exhausting it is to function as a disabled person & that no two are alike. They look at the surface & no deeper.

I know that some didn’t like Channel 4 referring to Paralympic athletes as ‘Superhuman’. It has unintentionally, to a degree resulted in people becoming more misguided, believing that Paralympic athletes have got ‘passed’ their disabilities because they were just more determined to succeed. Whereas in reality these Paralympians rely heavily on support behind the scenes & benefits to get them where they are. And that it’s not because one simply tries harder but more that a disability can effect many individuals, in many ways & not even to mention the fact that disabled people may not want to do athletics but instead may be a talented writer or artist. I still however think they are awesome for what they do.

I really enjoyed The Last Leg, the hilarity & stupidity of things. I loved how the show tried to engage with people with the show’s “Is it ok ?” questions such as “Is it ok to punch their friend in a wheelchair if he’s a n00b ?”.

Then you have 999, What’s Your Emergency, that highlighted beautifully how much strain the ambulance service is under & how much more it will be in the future due to the significant NHS & welfare cuts which will mean that even more people will likely fall through the net.

But unfortunately any good work that is done on one show can be undone on the next.

BBC’s Saints & Scroungers always shows two cases of benefit fraud to the one ‘Saint’ helping those to get the benefits they need. Although it is great that these people help in times of crisis, there is no disclaimer to explain how low the rates of benefit fraud are & that the show’s ratio is in no way representative of actual statistics.

Then you have Channel 4’s programme “Benefit Britain 1949”.

Now I’m ‘sure’ that Channel 4 were trying to show that the welfare budget can’t be carelessly cut & that people have been & are being affected by cuts detrimentally. That although the original system was much more tailored towards the individual, a good thing, it was only supporting those they deemed ‘deserving’. Unfortunately when reading peoples’ reactions to these types of programmes on Twitter, this is a theme that keeps cropping up. Unfortunately I think this show whilst trying to show why we had moved on instead gave more titbits to those that believe all the inaccuracies.

Also it was a different system to today, a different time, society isn’t the same & so consequently, it was often out of context. I also found it odd that the show split the claimants into ‘sickness’ & ‘disabled’ categories as often these go hand in hand.

 Yes, it did not help matters that the sickness claimant came across as little miss gobby, very rude & aggressive, hardly the average claimant but this may have come across a lot worse due to editing. However I can not stress how much my heart sank when I saw how people with less visible illnesses were being portrayed through this women.

It’s a shame that they didn’t chose someone else that could have highlighted truly how debilitating a invisible condition can be, as this is something that it seems the general public fail to understand.

Then there was the programme ‘We Pay Your Benefits’ which saw tax payers following claimants to more or less ‘judge’ what they feel is acceptable for people to buy & do using their benefits. People now have obstinate objections to people having mobile phones, internet & family pets. These previously weren’t seen as a luxury with the exception of probably family pets but people seemed to understand that people mostly had family pets before becoming unemployed & understood they were a key part of the family & a massive comfort. Also mobile phones & internet were seen as a necessity & now people believe that they are a luxury. It seems so illogical in this day & age where mobile phones & internet are such an integral part in life that people can think this way. I found it sad that people seem to have lost sight that the system we have supports the people in our society who need it the most, that it is there for them in case the worse did happen & that fraud is low.

And finally we have Channel 4’s ‘Benefit Street’ which if you were to believe was typical representation of people claiming benefits, which by the looks of Twitter a lot did, the majority of claimants would be committing benefit fraud, shoplifting & growing cannabis in their spare room to pay the bedroom tax. There were death threats after the show on social media & the whole filming of the show lacked responsibility. However it did highlight how you can’t just simply beat people with a rod & expect them to change, people need opportunities & the right help, but also some people just won’t change, that’s human nature.

The second episode showed immigration in the UK. It highlighted the racism & the inaccurate beliefs like they can earn £2,500 a day. However it also showed how immigrates without permission to work are so easily exploited & how when they report this to the police, they fear major retaliation but many people on social networking sites again didn’t see this, instead fixated on inaccuracies.

The third episode followed a young family with children. It portrayed a young couple that seemed to struggle with parenting. Its not a surprise that the kids behaviour was challenging when given a sugar coated cereal at midnight, with one parent telling the other to f**k themselves & ‘Fungi’ & other drunken idiots outside the front door creating a bad influence.  But because of the way this documentary was filmed & because a proportion of society that seems to think if they witness one thing happening on TV, that this some how means that this is representative of everybody in the same situation. Just because a child has either a single parent or young parents does not mean that they’re not going to bring up their children correctly & the rest of parents out there have just as much chance of messing up the child’s up bringing or not as anyone else.

The episode did also show that the couple was trying to improve their child’s behaviour, although I doubt how much of the public remembered that as much & a later article stated that the couple have learning difficulties which isn’t mentioned in the show.

I understand why people are upset about about these “documentaries”, some are upset that documentaries on these topics happen at all, others are upset that a valuable opportunity to highlight a issue has been lost in favour of being exploitive & creating “entertainment” instead of a documentary. In these cases they usually lack the full facts, are shown out of context & people within the disabled community face the backlash as a consequence.

However if we don’t discuss these issues we will never move forward but the public needs to be more aware that it is impossible to produce a doumentary that isn’t bias in some way because the individual is bias & that viewers should show more common sense & take these shows with a pinch of salt. It is also up to film makers to always maintain a level of detachment in making a documentary & to make sure, as much as possible, that the topic is portrayed in a true & balanced light.

I think there were many failings in making Benefit Street, particularly the disclosure of the actual street name which made these people more of a target so much so that a number of the residents have been moved. Also that it was made by an outside third party company, that they obviously lost control over it but they had responsibility to air it or not.

With the airing of Benefit Street it has shown that certain sections of the media have become so toxic over the subject of welfare but this is only allowed to continue because people blindly believe in these misrepresentations.  If people on benefits & the disabled were instead an individual, in certain countries I have no doubt that they would be pulled up on slander or for liable way before now.

The fourth episode airs tonight to be followed by a final episode & TV debate which is supposed to let the participants have their say unfortunately we will have to wait to see if this is a intelligent discussion or if this becomes just more viewing fodder.

It has taken me a while to write this as I hadn’t intended on writing this much in the beginning but have been adding to it little by little as more and more shows have been produced. Originally it was supposed to be on the first ones I watched but as time goes on there seems to have been an increase in this type of programming & I thought it interesting to note the effect of all these shows combined . With this increase it seems like certain sections of the public have lost sight that the fraud rates are low & that this system is in place to assist in times of need, as it should be. They seem content on judging on face value & not realising they don’t have the full facts at hand, how would you like this if it was done to you?

Happy New Year

So welcome to 2014!

2013 was a odd year, lost my bunny that hadn’t been well for a while, we then got a beautiful mini lop that unfortunately passed away so young but the short time we had with him was so precious. Then we have our current mini lop Aslan who is so beautiful, even if he has issues (I think he thinks he’s a puppy). He’s such a content bunny.

Health wise it has been pretty poor, stomach bleeds which finally lead to me being diagnosed with bile reflux disease. I have got further tests to have on my stomach & throat & throughout the year doctors have suspected a range of pain disorders including Fibromyalgia to go along with the Arthritis, Hypermobility & such.

Also as with every year I have had to deal with something that I know I’m not alone with, that many people deal with the same but its also something that many people don’t understand is an additional complication in someone’s condition & how it makes a condition very unstable.

I have to take medication for my arthritis which means I’m immune suppressed, this means that I often get infections, so then I have to stop the medication, my arthritis flares up & the infection makes this worse, I get over the infection then I have to restart the cycle all over again.

Its frustrating as you never truly establish a plateau level with your condition but this for some is unrealistic & instead I’ve found my efforts are best placed trying to learn to live with a condition that is unpredictable.

This year this has occurred many times but the main occurrence was when I had to go over 6 months without meds, arthritis flared up pretty bad & later found out that I had a cyst in my face resulting in surgery.

2013 was definitely a year of what’s next in politics, knowing that some knee jerk reaction to put another poorly thought out ‘plan’ into action at the last minute would happen in response to something someone might have said or done & wondering how bad the fall out will be. The years of knowing nothing would happen until the budgets are long gone & it is sad knowing how much anxiety people are facing, knowing that the rug may be pulled from underneath them at any time. How do you relax? & concentrate on your health?

I also found such a massively determined set of people that won’t be silenced, that deal with a range of health problems & disabilities themselves but know how important it is that the facts reach the public and that people shouldn’t be scapegoated.

I have my own ideas & wishes for the year ahead & have learnt through the years that plans may get derailed or they may have to wait as my spoonie body takes over however frustrating that may be but things can get done with a little time & a lot of stubbornness.

Food banks, poverty & a parallel universe

So I watched most of the food bank debate. Not at the time as my bendy spoonie arthur body wasn’t playing ball.

It was a sad sight to watch as Labour passionately recalled stories of people, in desperate need in their constituencies. As Labour were trying to make their point the coalition benches laughed, brayed & tried to shout them down as they attempted to highlight the crisis that is unfolding in this country, one of the richest countries in the world where people are being propped up by food banks, charities as there government continues to fail them.

The coalition benches made the whole Charade feel like the Goverement was implying that poor people are just darn stupid, we’re beating them with this rod with all the welfare cuts & telling them to work so why arn’t they? Their problems would be resolved. If they are at food banks they deserve nothing more, it is of their own doing.

The coalition further blamed people for poor budgeting skills but didn’t understand that for many, when they reached the foodbanks they have fallen so hard & so quickly & for others they have already striped their outgoings down to the bone. If the end line is that you need £60 & you only get £40, how are you supposed to win? Just demonising people further isn’t the answer.

Most of the coalition MPs come from much more privileged backgrounds, that have never had to deal with these problems. These MPs live in a world where they get a food allowance, expenses & subsidised bars. They have never had to hardcore budget like the people that end up at food banks do. They’re in a parallel world were they constantly live with their fingers in their ears & take their party’s doggy statistics on face value.

The coalition put these policies in place & they’re just not logical. If you speak to most, they agree that the system needed reform but it needed to be fair, the coalition need to accept that there are people that are just not able to work & that working isn’t the only solution out of this kind of situation, that work doesn’t always pay which can be seen by the increased number of people in work, forced to rely on food banks as wages are low & commodities high.

The coalition throughout continued to state that the food banks began under the last government which is indeed true but the explosion in the number of food banks under this government demonstrates how much policy is not working & that the simple truth is, that if social policy was better there wouldn’t be anywhere near the demand that there is now.

If anyone agrees that its ok for people in this country to have to rely on food banks, for children to be so grateful that they were given chocolate because its one of the best things they have seen in a while & that for the red cross to be doing its first appeal since world war 2 for the people in the UK, then remember this; anyone can find themselves in this situation & if you’re saying to yourself not me? there have been many people before you that have said the same & yet found themselves in a position they would never have seen coming.

These MPs call each other honourable members, if this is honour, its not an honour I recongnise.

17# Weekend cute, humour & awesome

For everyone that feels this way this week.

My body has not wanted to do anything & hasn’t co-operated at all due to my arthritis flaring up & my hypermobility playing up. Don’t get my started on my stomach >.<

Hope everyone has a brilliant week to come

(I do not own the images but respect the awesome)